This information was submitted by Grace’s mother. The first part of this post is a timeline constructed from Grace’s medical records.
- Vaccination: Hep B : Aug 20, 2007 (12 hours old) unable to maintain body temp for 7 hours.
- 9/04/07: Well visit: dr. notes: Patient is female. Alert, well nourished, developmentally normal, symmetrical eyes, symmetrical ear placement, symmetrical smile, hips, legs, feet, shoulders, arms, hands. infant is calm and easy to console.
- 11/02/07: Sick visit: crying, fever, diarrhea.
- 11/07/07: 2 month Vaccinations: DTaP, HepB, HIB, Polio (even though he knew she was sick) notes state doing well, no developmental concerns. coos, follows past midline, chest off table, head in midline, attn to sounds, social smile.
- 1/23/08: 4 month Vaccinations: DTaP, Hep B, HIB, Pneumococcal, Polio: at visit dr notes babbles, reaches, supports on hands, heads up, steady, laughs, rolls front to back.
- 3/25/08: 6 month Vaccinations: DTaP, Hep B, HIB, Pneumococcal, Polio: at visit dr notes: babbles, responds, sits unsupported, no longer rolls, raking grasp, transfer object, no stranger anxiety.
- 4/16/08: sick visit: Rash on back of neck, chin, and head, 100.2 fever, cough, crying. (gained 10 lbs between 1/23 and 4/16)
- 6/19/08: Dr notes: throws objects, says Dada, sits well, pincer grasp, finger foods, stranger anxiety, scoots.
- 7/24/08: I contacted Dr to discuss Developmental delay, not crawling, no longer scooting, large weight gain, sleeping 14 hours.
- 8/6/08: spontaneous hypothyroid dx (thyroid at birth was normal)
- 8/21/08: 12 month Vaccinations: MMR, Prevnar, Varicella
(Dr visits and calls missing from records (Dr deleted) Gracie appeared to have “gone deaf” stopped looking at us, stopped answering to her name, stopped babbling. Hearing test was normal. First steps contacted.
- 9/9/08: lethargic, fever, no improvements with developmental delays.
- 10/10/08: Influenza vaccine
- 10/28/08: sick visit: 101 fever for 1 week prior, cough and chest congestion.
- 11/7/08: influenza vaccine
More records are missing.
All further vaccines have been declined.
Grace never regained the ability to babble (talk). She struggles with her walking and balance. She has a very hard time using her hands and struggles with grasp. We have had several genetic tests done (including 2 tests for Rett’s Syndrome, with normal results – no mutation). She had an MRI showing no concerns. She had an EEG showing no seizure activity.
Grace now suffers from severe IgE food allergies to Corn, Wheat, Milk, Eggs, Soybeans, Peanuts, Treenuts, and Sesame Seeds. She has rarely has a formed bowel movement. She wakes at night screaming in pain that I can not stop because she can not tell me where or what hurts. She is only able to eat 3 foods currently. She suffers from severe eczema. She is nonverbal so these are the major ailments that we can tell she suffers from.
I have had to leave my career in order to stay home to care for Grace 24/7. It is unknown if she will ever lead a productive, functional life on her own. She has 3 siblings that are constantly affected by her vaccine injury. Their lives are put on hold as every event revolves around who will care for Grace, what food can we bring, and whether we afford it as our finances have been severely affected.
Therapy now runs $120,000 a year and her diet is roughly $300 a week. I can no longer work, and my husband is a firefighter. This is bankrupting us. We are losing our home.
I did seek compensation through the Vaccine Injury Compensation Fund but was told by 3 attorneys that they are not taking any autism cases and do not know of anyone who is. The others that I contacted never returned my calls. Her statute has expired. The pediatrician to this day has refused to provide our complete vaccine records. I have made 4 written attempts and my attorney has made 3. I have contacted the IN Attorney General to begin filing complaints with the medical board. His lack of providing records also would have prevented us from filing in vaccine court. We are left on our own to find the money and resources to try to make her life livable.