On my urging the doctor put Devin on a waiting list with a developmental pediatrician but it could be several months, even a year before we heard from them. So we decided to go out on our own and had him evaluated. He was diagnosed October 26, 2010 with moderate autism. When we got the official diagnosis and it was sent to our doctor, he said, “Well you know it couldn’t be the MMR vaccine because you delayed it!” as if he still just wanted to be right. But in fact, Devin regressed badly from the 15-20 month time frame to the point that he would literally sit and stare out into space. I remember calling my husband over and telling him to watch as I said Devin’s name louder and louder , even yelling it and he would not respond and continued to stare off. I would then clap and make noise and he still wouldn’t respond. We fired our doctor. Since then Devin has been said by one evaluator as being on the severe end of the spectrum. He started Speech and Occupational Therapy before his official diagnosis at 20 months of age. He also received a grant for ABA Therapy and at one point we had a revolving door of therapists coming in/out of our home. We moved from MI to NC and lost ABA. We continued ST and OT for three years, but it was overall ineffective. We are now doing Mendability, a sensory-enrichment therapy as well as gfcf diet and supplements that are helping. His last diagnosis from his ST and OT was Severe Receptive Disorder and Severe Expressive Disorder in addition to the original diagnosis of autism. He also has severe Sensory Processing Disorder and is “Hypo” sensitive and sensory seeking. He also struggles with Pica. He also has digestive issues, food allergies, and skin issues. When I took him to the dermatologist for severe eczema, he was seen for a matter of seconds and we were simply told it was a skin condition and to use a topical OTC petroleum base cream on his face. But after removing dairy from Devin’s diet as well as food dyes his eczema has completely disappeared and not returned. So diet and supplements have helped.
Devin still has a ways to go. Unlike all of my old friends, I don’t have his first day of Kindergarten picture on facebook today. I am homeschooling him and don’t believe he could function in a typical school setting, especially for 7 hours a day. Although he is talking, it remains a challenge and difficulty for him and he is very low verbal, some would consider him to be pre-verbal. He still has severe sensory issues. He still has problems with social situations. Mendability has been a great therapy for Devin and we are fortunate that he has been able to be in it for a year now. He has improved dramatically in attention, focus, sleep, and repetitive behaviors. He has seen some progress as well in speech. We are adding new supplements soon. He is not his diagnosis and is such an awesome little guy!! He works on the ipad, loves swimming and his trampoline, pesters his little sister, and tries to talk everyday. He wants to talk and everyday he tries. Every time he does talk it is in the right context. He wants and tries to socialize, but he has no friends. He doesn’t want the behaviors he has and tries to control them. He is no longer that quiet unresponsive toddler! He makes good eye contact at times and remains a loving, funny and affectionate wonderful child.
I give God the glory for putting the right people in our lives to continue to help him. I keep telling his story because vaccines from day one had a devastating effect on Devin. After his reaction I kept vaccinating him compounding the assault over and over again. It was like watching someone who was being slowly methodically poisoned over years and watching their bodies react from an accumulation of chemicals and toxins, deteriorating and just disappearing into himself. I sincerely pray all of the time that my story and countless others can make their way to people in positions of power to do something about it. Parents need to know that autism IS a side effect of vaccines and it is not rare. My son is 1:50 who now have autism. 1 in 6 children in America have a type of disorder. I had nothing but good intentions doing what I thought was everything right during my pregnancy and after. But I now have nothing but regrets and wish I was told the truth about the vaccine ingredients, the fact that a subset of children cannot excrete the toxic load, lack of efficacy, that they are giving too many vaccines and too many at the same time. In my experience not one vaccine is safe. Maybe my son’s story can save future children and families from the horrific reality of vaccine injuries. The CDC knew vaccines contributed to autism in 2000. My son was born in 2008. We should have been told.