Dear Dr. Goldstein:
Earlier this week I attended your presentation, along with six of my friends. Of course, you already know this. You knew we were coming before we arrived. I suppose I should thank you for not going through with your threat to cancel the presentation altogether. You were very brave to go through with it. I’m sure my friends and I were a daunting bunch.
The woman who introduced you made it apparent that we were not going to get what we came for, which was a discussion about “The Vaccine Controversy.” Instead, we were told that we would not be allowed to speak, and questions would only be entertained if they were written down and submitted on 3×5 cards, which your entourage supplied. The woman made it clear that our presence would be tolerated as long as we behaved ourselves. If there was any doubt about the seriousness of the situation, the bodyguards you had positioned throughout the room certainly reinforced the message.
There is one thing I would like to clear up… we were not there to harm you in any way. And, we behaved just exactly as we had intended to. There really was no need to threaten us with removal or to silence our voices. All of us who were present are parents of vaccine-injured children. We understand what it’s like to desperately want to say something and to not be able to get the words out or to be heard. We’ve been through it many times… with our children. Their voices have also been silenced. But as the woman at the podium stated, Wednesday’s event was your arena. It was not the time for debate or controversy, regardless of what your flyer advertised.
I must say there is a bit of false advertising going on here. There was no “discussion” and there was no “controversy” allowed.
The woman at the podium (sorry, I didn’t get her name) made reference to “veiled threats made in a facebook group.” There were no “veiled” threats made that I can recall. What we wanted was to have you clear up what we felt must certainly be either inaccuracies on your part or misconceptions on ours. I will admit there was a bit of an adversarial tone to the group at times; that sometimes happens when you have parents of vaccine-injured children discussing the denial of mainstream doctors who refuse to even acknowledge what has happened to our children, much less take an ounce of responsibility for the damage they have caused. Again, I apologize if you found our “tone” threatening. But, honestly… I’ve gone back through the posts and I cannot find anything that could possibly be taken as menacing or even anxiety-producing… as long as you are certain of the veracity of your stance. I therefore must conclude that the sole purpose of your act of virtually duct-taping our mouths shut was to prevent us from sharing with potential patients the most powerful weapon we could ever carry: the truth.
It’s one thing to stand at the podium and spout about how wonderful vaccines are, and to tell expectant mothers (weren’t there THREE in attendance?) things like, “Don’t believe the stuff you read on VAERS, most of it’s just made up, anyway.” It’s quite another to combat the truth in the form of parents who live “the stuff on VAERS” every day. Gee… putting it that way, it’s no wonder you were so scared. You have what, eight pediatricians in your practice? And only three pregnant women showed up at your vaccine talk? It appears our work may have already been done… by you. Let me ‘splain somethin’ to ya, Mr. Vaccine Champion… regardless of what you may believe, parents are doing their homework. They know you’re lying when you tell them “But! There’s only TEN vaccines! REALLY!! There’s NOTHING to be worried about! See??? I’m the DOCTOR! TRUST ME!!” It’s crap like that that’s going to result in you losing patients before you ever have them. You’re not going to have to worry about kicking them out of your practice; they’re never going to set foot through the door in the first place. At least not the ones who are educated and who have the funds for the copay.
There are a lot of things I want to discuss with you; since this is my arena and you can’t silence me here. However, this first letter is my “letter of introduction.” I want you to meet us, and to know who our children are and what vaccines have done to them.
I asked my friends to answer the following questions:
1. How many vaccine-injured children do you have?
2. To which vaccines did your child react adversely? (if you know)
3. What are the major symptoms your child is dealing with?
4. How has your child’s vaccine-injury affected your family?
5. Have you sought compensation for your child’s vaccine-injury?
Here are some of the responses I received:
1. number of your kids who are vaccine-injured – ONE
2. vaccines they reacted to (if you know) – DPT, OPV, MMR (NOT SURE WHICH ONE CAUSED HIS ADVERSE REACTION, COULD BE JUST ONE, COULD BE ALL THREE.)
3. major symptoms you are dealing with – BACK THEN? SHY 106 TEMPS, SWELLING AT INJECTION SITE, HIGH PITCHED SCREAMING/CRYING, ENCEPHALITIS, (SUSPECTED) PETIT MAL SEIZURES, ACUTE CEREBELLAR ATAXIA, ADHD (LISTED AS “POST IMMUNIZATION RELATED”), LEARNING DISABILITIES, DELAYED MOTOR SKILLS.
4. how this has affected and continues to affect your families – HE HAD TO GO BACK ON A BOTTLE ‘CUZ HE COULDN’T EVEN HOLD A SIPPY CUP ANY MORE. WE HAD TO CEASE POTTY TRAINING ‘CUZ HE COULDN’T STAND ANY MORE (HARD TO USE THE POTTY CHAIR WHEN YOU CAN’T STAND!!) AND, AS A DIRECT RESULT, HE WASN’T POTTY TRAINED UNTIL HE WAS 4YRS OLD! HE ENDED UP WITH A SLEEP DISORDER, WENT FROM A HAPPY-GO-LUCKY & FEARLESS CHILD TO A VERY TEMPERAMENTAL & CLINGY ONE. HE STRUGGLED IN SCHOOL THE WHOLE TIME HE WAS THERE. HIS FATHER AND I DIVORCED, I HAD TO WORK JOBS I COULD TAKE TIME OFF FROM (MOSTLY TEMPS) IN ORDER TO TAKE HIM TO A MYRIAD OF DOCTOR & OT APPTS AND ATTEND IEP MEETINGS. I HAD TO HIRE TUTORS TO HELP HIM AT HOME. HE’S AN ADULT NOW, STILL SUFFERS FROM THE SLEEP DISORDER & ACUTE CEREBELLAR ATAXIA (COMES & GOES) AND FOOD ALLERGIES IN WHICH WE JUST SPENT TIME IN THE ER FOR IN THE PAST WEEK
5. have you sought compensation for injury – YES, AND WE WON A SETTLEMENT FROM VICP
1st child: Age 6 now. Given MMR, varicella (in the form of MMRV), Hep A, Prevnar at 12 month visit.
Regressed behaviorally, personality change, stopped sleeping, constant crying. Given HIB, Dtap at 15 month visit. Loss of all eye contact, constant screaming, belly posturing, obsessively opening and closing cabinets and turning light switches off and on. No words. No socialization with others. Little to no response to pain. Problems: Strange viral rashes. Parasites. Heavy metal toxicity. Issues with strep infections. Immune problems. Frequently ill. Gut dysbiosis. Alternating constipation and diarrhea. Disturbed sleep. Mito dysfunction. Malabsorption. Vitamin deficiencies. Food allergies. MTHFR mutation. “autism.” We did not seek compensation.
2nd child: Age 9 now. Severe peanut allergy, onset 15 months old. (Don’t know if this is relevant, I know her vaccines caused this but cannot prove it.) She is currently recovering from this, due to peanut allergy desensitization. We stopped vaccinating her at 4 years old, when we put two and two together regarding her baby sister. She never received her boosters. She also had a tree nut allergy, but has recovered from this.
Only one of my two children are vaccine injured. I didn’t vax my second though, that would be why. She reacted to the Hep B, HiB, MMR, DTaP. She has a damaged immune system, suffered from encephalitis, has leaky gut, the list goes on. I am no longer able to work because we have no one to care for my daughter. We struggle to provide the care our daughter needs, and yet my husband makes “too much” to qualify for any kind of help. Every single day is a struggle and full of sacrifices no family should have to make. We have not sought compensation, nor do we plan to. I don’t want money. All the money in the world couldn’t make this right. I just want people to stop sweeping my daughter and kids like her under the rug.
My son is 10 years old, and is not toilet trained, is non-verbal, aggressive, hyperactive, doesn’t sleep, has abnormal EEGs, a diagnosis of PANDAS, as well as severe autism, and immune system dysfunction. I believe the combination of vaccines continued to assault his system from when he was in the womb and I received the 1 and only flu shot I have ever had in my life. That got the ball rolling, and until I realized what was going on, he continued to regress. I no longer work due to managing his medical needs that include doctor appointments and his therapy schedule. We have not been compensated nor have sought compensation.
One child, a girl, age 5. she reacted to her 6 month vaccines which included all those on the schedule plus a flu shot. She started shaking anytime she was excited or overstimulated. It happened a lot and is still happening. At 12 months, again all the vaxes on schedule, she lost her language and started developing autistic triats. withdrawn, playing with toys inappropriately, severe sensory defensiveness. After that we stopped vaccinating.
Her major symptoms are severe — language delays, social deficits, sleep disorders, food sensitivities, inflammation, ASD, PANDAS,
She’s in mainstream Kindergarten with a much needed aide. We spend the balance of every day in therapy. She has enormous anxiety and a very hard time in groups of people. We cannot have a conversation with her, so our entire world has been affected. My life now revolves around autism. I was previously an attorney. We have not sought compensation. Was told by a fellow lawyer that no cases are won anymore.
Grace: 4 years old
Hep B : Aug 20, 2007 (12 hours old) unable to maintain body temp for 7 hours.
9/4/7: well visit: dr. notes: Patient is female. Alert, well nourished, developmentally normal, symmetrical eyes, symmetrical ear placement, symmetrical smile, hips, legs, feet, shoulders, arms, hands. infant is calm and easy to console.
11/2/07: sick visit: crying, fever, diarrhea.
DTAP, HepB, HIB, Polio: Nov 7, 2007 (even though he knew she was sick) notes state doing well, no developmental concerns. coos, follows past midline, chest off table, head in midline, attn to sounds, social smile.
1/23/08: DTAP, Hep B, HIB, Pneumococcal, Polio: at visit dr notes babbles, reaches, suports on hands, heads up, steady, laughs, rolls front to back.
3/25/08: DTAP, Hep B, HIB, Pneumococcal, Polio: at visit dr notes: babbles respon, sits unsupported, no longer rolls, raking grasp, transfer object, no stranger anxiety.
4/16/08: sick visit: Rash on back of neck, chin, and head, 100.2 fever, cough, crying. (gained 10 lbs between 1/23 and 4/16)
06/19/08: dr notes: throws objects, says dada, sits well, pincer grasp, finger foods, stranger anxiety, scoots.
7/24/08: I contacted dr to discuss Developmental delay, not crawling, no longer scooting, large weight gain, sleeping 14 hours.
8/6/08: spontaneous hypothyroid dx (thyroid at birth was normal)
8/21/08: MMR, Prevnar, varicella,
(dr visits and calls missing from records (dr deleted) Gracie appeared to have “gone deaf” stopped looking at us, stopped answering to her name, stopped babbles. Hearing test was normal. First steps contacted.
9/9/08: lethargic, fever, no improvments with dev delays.
10/10/08: Influenza vaccine:
10/28/08: sick visit: 101 fever for 1 week prior, cough and chest congestion.
11/7/08: influenza vaccine:
more records are missing
all further vaccines have been declined:
Grace never regained the ability to babble (talk), she struggles with her walking and balance. She has a very hard time using her hands and struggles with grasp. We have had several genetic tests done (including 2 tests for retts syndrome). All results were normal with no mutations found. She had an MRI showing a normal functioning brain. She had an EEG showing no seizure activity. She now suffers from severe IgE food allergies to Corn, Wheat, Milk, Eggs, Soybeans, Peanuts, Treenuts, and Sesame Seeds. She has never had a formed bowel movements. She wakes at night screaming in pain that I can not stop because she can not tell me where or what hurts. She is only able to eat 3 foods currently. She suffers from severe eczema. She is nonverbal so these are the major ailments that we can tell she suffers from. I have had to leave my career in order to stay home to care for Grace 24/7. It is unknown if she will ever lead a productive functional life on her own. She has 3 siblings that are constantly affected by her vaccine injury. Their lives are put on hold as every event revolves around who will care for Grace, what food can we bring, and can we afford it as our finances have been severly effected. Therapy now runs $120,000 a year and her diet is roughly $300 a week. I can no longer work, and my husband is a firefighter. This is bankrupting us. We will most likely loose our home. I did seek compensation through the vaccine injury compensation fund but was told by 3 attorneys that they are not taking any autism cases and do not know of anyone who is. The others that I contacted never returned my calls. Her statute has expired. We are left on our own to find the money and resources to try to make her life livable.
Child with autism injured by flu vaccine (was mistakenly given infant dose, needed second). Beginning immediately and lasting the next three months, decreased eye contact, attention, speech, sentence length, increase in negative behavior, need for sensory stimulation. Missed 8 days of school due to sleepless nights. Had been progressing academically, and was unable to continue academic program. This outcome was noted individually and without prompting by speech, occupational and behavioral therapists as well as teachers. Family life completely disrupted.
Dr. Goldstein: There were many things you said on Wednesday night to which I take issue. However, none of the inaccuracies and misinformation regarding vaccines made me as angry as your outright denial of the truth of our children’s injuries. More than once you referred to parents of vaccine-injured children as “seeking compensation” and you seem to have taken the stance that we are in this fight for the money. You claimed that there are “redundant systems” in place throughout the community, and actually had the gall to insinuate that vaccine-injuries are over-reported to VAERS. Nothing could be further from the truth and if you genuinely do not know this, you are an even bigger tool than those two guys on the Progressive Insurance commercial. All I can think about when I envision you standing there in that auditorium is “No mas pantelones.”
Shame on you.
To be continued…
In the next segment of my Open Letter to Dr. Goldstein, I will break down the presentation and address some of the many untruths presented by “The Vaccine Champion.”